It's been a while since I have updated my process... I'll go back about a few weeks ago. So much has happened and I wish I had been updating daily so that I wasn't stuck trying to remember.
Let's recap - on Jan 21st I was diagnosed with Stage 1 Breast Cancer. On Feb 16th I had a double mastectomy with reconstruction. My healing began and I THOUGHT that was it! Two weeks after my surgery, my lab results of the tumor were in. An Oncotype test determined that the genes in that little annoying tumor were "agressive" and Chemo Therapy was recommended. I went in for another surgery (while still healing from the intial one) to get a Portacath put in. It was outpatient surgery and I think I was out for only 30 min.
The Portacath (also called a "port") was placed in my under my skin on my chest near my right shoulder. It was pretty uncomfortable. It will stay there until chemo is complete and will have to be surgically removed. So - this is where the TOXINS (or "Chemo") are administered. The Port has a cathether that goes under my collar bone then takes a dive towards my heart. From there the toxins are pumped to my entire body in an effort to kill any last cancer cells (if any). I have attached a picture of what the Port looks like - Yes, it is purple...
My initial reaction to hearing "we recommend chemo" was devastating. I thought hearing "you have cancer" was bad... That was nothing compared to these words!
I had Chemo Class on Thurs, March 10th. I was in a room with 4 other families. One person from each family was in my same boat - but all with a different cancer and at a different stage. I was told my treatments were going to be the shortest of the group's. My treatments will last from 2 to 3 hours each time. My schedule was also a lot different from those others. Needless to say, i was the youngest one in there and bawled my eyes out thru the entire informational session. I felt like a complete basket case - these other people just "took" the news as if they expected this. I, on the otherhand, felt like I had been given a death sentence and was having a hard time accepting this news.
My sessions are every 21 days for the first 3 months. the Second 3 months my chemo treatments will be every week! That's a total of 16 sessions and 6 months of this shit. I'll celebrate my last day of Chemo sometime in August.
In the class, at my first Oncologist appt, and at my first Chemo Treatment i was told (3 times) that one of the side effects is losing my hair along with extreme fatigue. I guess the doctors and nurses felt like I was ignoring this statement and I needed to be told again and again. This has been the hardest of all and this is why I felt a need for a Private Blog. From here on, it's raw emotion. I knew when Chemo was suggested that this was going to happen and thats why it was so disbturbing to me to hear it.
My first chemo session was on Tuesday, March 15th. It lasted almost 4 hours. First I saw my Oncologist who reminded me everything would be o.k. and that the reason we are going this route is because she believes I'll be CURED when this is over. The nurse came in, found my port and stuck a needle through my chest and into the rubbery part of the port. Then the Toxins came. It was actually pretty comfortable. There's WIFI so Doug plugged away on his email and I sat in a reclyner with my new IPAD given by Tina and Rick with my soft pink fuzzy blanket from Timberli. There are tvs, snacks, and drinks, and about 20 other people getting some sort of the chemo coctail also. it wasn't so bad and I have to admit, I think I handled it like a champ!
I was told to get rid of my hair so that I didn't have to deal with losing it on its own. Apparently that is more overwhelming to most women. I was also told that because of the type of person I am - in control most of the time that I would want to be in control of THIS as much as possible.
My hair has always been part of me ... I know it doesn't "define" me, but it is part of me. It wasn't the best - long, blonde, thin, and most of the time unmanageable but IT WAS MINE and I could do what I wanted to with it!! I put away my blow dryer, my straightener, and my fancy hair products. My poney tail holders now belong to Addison. It felt as if something or someone had died leading up to my buzz cut. I mourned like I had never mourned before and I cried like nothing else.
This will sound funny and ridiculous to some, but I don't care ... Losing my real breasts was not nearly as upsetting as losing my hair. It's different for everyone and for me this was the most miserable point in my life! I told Doug that I had never been this sad before and even when I say it (or write) it now, it brings tears to my eyes.
Cutting my hair happened last Wednesday, March 23. It doesn't seem that long ago but it feels lieke an eternity to me. That day will forever be a day etched in my brain. I'll always remember the Journey song playing, I'll remember looking in the mirror and taking that deep breath before building up the courage to say"I'm Ready" and I'll remember the champagne Doug and I drank silently with tears in our eyes.
I have new hair now, obviously it's not mine. It's darker but the same length. It's heavy and thick but manageable. It's actually a ton easier than using the Root Booster, a blow dryer, and flat iron. I thought I would never go outside of my house once I got to this point - BUT I have shocked the shit out of myself and apparently my mom as well. The next day I put on my hair, played with it for a bit, and mustered up enough courage to go to Austin's first baseball game of the season. I was glad I did - Austin was the first batter of the night and hit a ball up past Center Field and scored a Home Run. Moments like those make my hair issues seem minor.
I've got one session down and another one coming up on Tuesday. After that, I'll have 14 more to go. Positive thinking!! I have never wanted time to pass so quickly as I do now. I look forward to every summer but this is definitely not one of them. This is going to be a tough year but I am determined to get through it without letting IT get the best of me.
Sometimes I feel defeated, humiliated, and exhausted. When those thoughts arrive I quickly rearrange them into thinking about how incredibly lucky I am that I found my breast cancer and that we moved quickly. I think about all of the choices I have had through out the last few months and realize that I have no regrets. I refocus on the positives and the overwhelming amount of support I have received.
BIG HUGS - MINDY